HL7 Europe Common Cancer Model
1.0.0-ballot - ballot 150

HL7 Europe Common Cancer Model - Local Development build (v1.0.0-ballot) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions

## Source and Additional Information

Contextual information This page provides reference material for the guide. It supports understanding of the proposed model, but it is not itself a model artefact or an implementation specification submitted for evaluation.

The development of the HL7 Europe Cancer Common Data Model (ECCDM) builds on a combination of European projects, shared datasets, international specifications, and community-driven initiatives.

The following sources and materials provide additional context and background information relevant to this Implementation Guide.

### European and national initiatives

ECCDM is informed by experience gained in several European and national initiatives addressing cancer data for clinical care, research, and secondary use, including:

- IDEA4RC – European project focused on the reuse of health data for rare
- PanCareSurPass – European project addressing survivorship care and long-term follow-up
- FLUTE – European initiative addressing data interoperability in oncology
- OSIRIS – National (French) initiative contributing experience on cancer data modelling

### Shared datasets and reference models

The initiative also builds on shared datasets and reference efforts aimed at identifying common cancer information across institutions and countries, including:

- MEDOC (Minimal Essential Description of Cancer), a dataset defining a minimal set of cancer-related data elements across multiple European hospitals

### Standards and specifications

ECCDM is aligned with and informed by existing standards and specifications, including:

- HL7 FHIR, used for data exchange and interoperability in primary data capture and sharing
- OMOP Common Data Model, widely adopted for research and secondary use of health data
- HL7 US mCODE (minimal Common Oncology Data Elements) Implementation Guide, which provides valuable implementation experience in oncology

### Project documentation and governance

Additional information on the ECCDM initiative, including governance, meeting minutes, model evolution, and decision history, is available through:

- HL7 Europe Cancer Common Model project page
- Conceptual and Logical Model documentation maintained by HL7 Europe
- Model history and change logs published on the HL7 Europe Confluence platform