# Source and Additional Information - HL7 Europe Common Cancer Model v1.0.0-ballot

* [**Table of Contents**](toc.md)
* **Source and Additional Information**

## Source and Additional Information

**Contextual information**This page provides reference material for the guide. It supports understanding of the proposed model, but it is not itself a model artefact or an implementation specification submitted for evaluation.

The development of the HL7 Europe Cancer Common Data Model (ECCDM) builds on a combination of European projects, shared datasets, international specifications, and community-driven initiatives.

The following sources and materials provide additional context and background information relevant to this Implementation Guide.

### European and national initiatives

ECCDM is informed by experience gained in several European and national initiatives addressing cancer data for clinical care, research, and secondary use, including:

* IDEA4RC – European project focused on the reuse of health data for rare
* PanCareSurPass – European project addressing survivorship care and long-term follow-up
* FLUTE – European initiative addressing data interoperability in oncology
* OSIRIS – National (French) initiative contributing experience on cancer data modelling

### Shared datasets and reference models

The initiative also builds on shared datasets and reference efforts aimed at identifying common cancer information across institutions and countries, including:

* MEDOC (Minimal Essential Description of Cancer), a dataset defining a minimal set of cancer-related data elements across multiple European hospitals

### Standards and specifications

ECCDM is aligned with and informed by existing standards and specifications, including:

* HL7 FHIR, used for data exchange and interoperability in primary data capture and sharing
* OMOP Common Data Model, widely adopted for research and secondary use of health data
* HL7 US mCODE (minimal Common Oncology Data Elements) Implementation Guide, which provides valuable implementation experience in oncology

### Project documentation and governance

Additional information on the ECCDM initiative, including governance, meeting minutes, model evolution, and decision history, is available through:

* HL7 Europe Cancer Common Model project page
* Conceptual and Logical Model documentation maintained by HL7 Europe
* Model history and change logs published on the HL7 Europe Confluence platform

