This page is part of the PanCareSurPass Project HL7 FHIR Implementation Guide (v0.1.0: QA Preview) based on FHIR R4. This is the current published version in its permanent home (it will always be available at this URL). For a full list of available versions, see the Directory of published versions

PanCareSurPass FHIR IG - Home Page

Scope

Specify HL7 FHIR logical models and profiles to be used within the European project PanCareSurPass. This project studies the scale-up and implementation of the digital Survivorship Passport to improve people-centred care for childhood cancer survivors.

The PancareSurPass Project

Overview

PanCareSurPass is a EU funded Research and Innovation action aiming to study the scale-up and implementation of the digital Survivorship Passport to improve people-centred care for childhood cancer survivors.

PanCareSurPass will conduct a robust assessment of the implementation of the Survivorship Passport by first conducting a pre-implementation study in six countries (Austria, Belgium, Germany, Italy, Lithuania, Spain) representing three infrastructural scenarios in Europe. The Survivorship Passport is an innovative, digital tool, developed in previous EU-funded projects, that can be used to overcome well-known knowledge gaps to improve people-centred long-term survivorship care.

Objectives

The overall aim of PanCareSurPass is to leverage the digital transformation of healthcare to improve people-centred survivorship care by scaling up and implementing an interoperable SurPass v2.0 across Europe.

Preparation for Implementation

1. design and conduct a multi-country pre-implementation study to assess the barriers and facilitators for scaling up use of the SurPass v2.0

2. develop a practical Implementation Strategy informed by the findings of the pre-implementation activities and IT technical specifications for SurPass v2.0 ensuring interoperability and cybersecurity.

3. develop, test and launch SurPass v2.0 using the IT specifications developed use in the multi-country implementation study.

Implementation and evaluation

1. conduct a multi-country implementation study of SurPass v2.0 for people-centred care with >5-year CCS and to assess implementation in terms of people-centred care (e.g. activation, empowerment, satisfaction, increase in knowledge), feasibility and cost effectiveness.

2. conduct a parallel observational qualitative study using SurPass v2.0 for delivering people-centred survivorship care to <5-year CCS and >5-year CCS (but with limited treatment data available).

European Future Implementation & Achieving Impact

1. develop a Prediction Model using data from the pre-implementation activities and multi-country implementation study to enable healthcare decision-makers to assess the suitability and costs of SurPass v2.0.

2. host an Implementation Toolkit for further European implementation of the SurPass for people-centred care in various healthcare settings across Europe.

3. disseminate and communicate the importance of people-centred survivorship care and results of PanCareSurPass to key stakeholders to promote future implementation of SurPass v2.0 to improve people-centred survivorship care in Europe.

Authors and Contributors